Dean's latest challenges...
Hello LLS Friends, This is Jerry, Dean and Betsy's son. My mom wanted to update the website but has not been able to get to a computer the last couple of days.Mom and Dad were down in...
View ArticleMore dry eye problem
Hi all,I wrote a while back about Nate's severe dry eye problems. At the time, he had no noticable symptoms of having such severely dry eyes. But they started him on restasis, which caused severe...
View ArticleMoving over from AML board because Dad found a donor! YAY!
My Dad just found out today that he will go to Medical University of South Carolina on March 7th and the stem cell transplant will take place March 13th! The donor is a "perfect match." I am hoping...
View ArticleI guess I'm going to Pittsburgh
Hi Everybody, I had my 2 week follow up after my pe with my onc today. He want's me to get another opinion from an onc in Pittsburg. Since I couldn't take Gleevac, and the pe was from Sprycel I...
View ArticleDaggone @#$*!&% rash again
Short and not so sweet:Gleevec-caused severe rash and then put on Tasigna Tasigna-caused severe rash and then put on Sprycel`Been on Sprycel four months and the miserable rash has reared it's ugly head...
View ArticleRetiree Prescription Drug Insurance
Has anyone had their retiree drug coverage converted to an EGWP (employer group waiver) Medicare Part D plan? UHC sold this as saving a lot of money for companies while being as good or better for the...
View ArticleRelapse 11 months post transplant
Hi allNever thought I'd have to write this post, everything was going so well, but found out today Matt has relapsed :'(Am beyond devastated. Please give me some hope regarding survival following...
View ArticleAnyone on ponatinib?
Is there anyone taking Ponatinib ? I am now on day 25 of 45mg. Would love to hear from someone as to what they are going through with this new drug. I was on Gleevec for the first year after being...
View ArticleTasigna fasting
Are you able to drink coffee or tea during the "no FOOD for 2 hours before or 1 hour after" time? It seems silly, but I can't find the answer elsewhere. LL
View ArticleFirst 1 Year Checkup
I have been away from the discussions for some time. 2012 was one tough year health wise but no cancer. I was ill for almost the whole year with various problems culminating very nicely with Shingles...
View ArticleAnother rash decision
I've written here about my rashes so to continue to bore the group, here's the latest:Stop Sprycel for a month more/less, then restart with a much lower dosage. I'm now on 100mg/day the restart will be...
View ArticleHow long does it take for Sprycel to get absorbed?
All I take 100 mg Sprycel at dinner, so far seems to be working with no major problems. However, past 3-4 days I have had the runs a few hours after dinner, possibly because I have a cold or gut bug...
View ArticleGraft failure, NOT!
My husband has AML and is now at day +110 from transplant. Feb. 22 the docs told us that they thought his graft was failing as his a number in his Chimerism counts had dropped from 60 something to 36%....
View Articlecleveland clinic
Hi, has anyone gone to a Dr Ramon Tui at the Cleveland Clinic? I have been on Sprycel lower dose 50 mg for over a year and I've relapsed. My numbers jumped in the past 3 tests, last one it went from...
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Setting Short- and Long-Term Goals
In February we introduced you to guest blogger Jessica Melore, who told the story of her blood cancer journey. Here her journey continues… I value a sense of control in my life. For me this translates...
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feeling unwell and anxious
hiI am hoping for a bit of advice. i am now 7 months on from diagnosis. am awaiting result of third BMB.i am on 140mg sprycel since the end of January and am feeling unwell. i dont know whether it is...
View Article8 YEARS!
Just had my 8 year mark of diagnosis with CML, been an interesting 8 years. Had almost all side effects.....started on 400 Gleevec, then up to 600mg Gleevec for 6 years, then down to 500 then now I am...
View ArticleNeed help! Confusing cbc counts...is it relapse?
Hi everyone,I have scoured the internet when I should have just turned here. Shawn had labs on 9/25 that were just fine. All of his counts were "normal for him". WBC 5.7, Hgb 11.1, Plts 77 (those...
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67 year old father REALLY struggling with whether to do SCT
Hi, all - Didn't want to hijack rockdoc's thread, so I thought it better to start my own here. I'll begin by saying that a few weeks of lurking on these boards have left me so impressed by the warmth...
View ArticleCan injury trauma cause cancer/cancer relapse?
For as long as I was diagnosed, in december 2011, I was wondering what was the reason for leukemia showing up. Just 2 months before I was diagnosed, I had this pretty serious injury, where my friend...
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